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The journey through grief

So vast, dark and uncertain

Where is my compass

 

God, are you with me

I search, eyes closed, heart open

Oh Source of comfort

 

I cry out in tears

A primal ache in my soul

Help me to find you

 

Prayer is hard for me

How do I speak to you God

Tears flow down my cheeks

 

They carry in them

All the words I cannot say

Hear them God, hear them…

 

I ask, Ayekah?

In the still quiet moments

The wind whispers back

 

I listen closely

Hineni, the wind calls out

Here I am, with you

 

The journey is long

The gentle breeze carries me

Forward with God’s grace

 

A traditional Japanese haiku is a three-line poem with seventeen syllables, written in a 5/7/5 syllable count.

 

deb and dad prego

Nurturing that first little life within me, getting ready to bring Yael into this world. The first granddaughter.

April 20, 2015. That is the day that I lost my Dad. Nine months ago, a phone call came that he was gone & my journey through the wilderness of grief began.

Nine months seems to weigh heavily on me. The number of months I so strongly associate with life, is today intermingled with death & loss. For nine months, I nurtured life within me. My beautiful daughters, hearts dependent upon mine, sustained by my body, growing within my womb.

For nine months I watched my belly grow bigger, and waited with eager anticipation for the chance to meet that little human being growing inside of me. The birth of a child, a time filled with so much hope & so many dreams.

But today, nine months feels very different. It is laden with sorrow & disbelief still.

My father is gone. And his death by suicide shattered me. The work of gathering up the pieces is done. And now comes the task of creating myself anew. The life I now nurture and tend to, is my own. What parts of me remain and what parts of me are newly shaped and formed by the trauma and loss that I’ve experienced? And where do they all fit?

I reflect back upon those ultrasounds with each of my children, watching them grow, cell by cell, muscle by muscle and limb by limb. The miracle of it all took my breath away. Every stage of their budding lives & selves, captured in black & white.

Is that what is happening to me?  It feels as if it is.  And yet, it doesn’t feel miraculous. It is hard, it is strange and it hurts. If I were to capture the images on film, would I even recognize parts of the me I was before? Or would they be too muddled, lost in a fuzzy haze of gray?

And what about the life that I lost? The father that is no longer with me. How do I hold onto him? Over these nine months I have struggled to let go of the trauma, the pain & the questions that ruminate. I do not want to carry them inside me. I do not want them to grow & fester. And as I try to let go of all of that, I fight to hold on to the essence of who my father was to me.

Nine months later, I look to find him in life, not by looking forward. Now, I can only find him in the looking back. That is a strange and painful contrast. There will be no more firsts, no more milestones, no more pictures or memories made. There is only what was. So in my heart, I nurture that. With each photo, each remembrance, each story or recollection, I breathe oxygen into the embers and I sustain within me, the life that I shared with my father. The love that we shared is and will always be a part of me, though it must now be in different form. It is only in spirit that I can touch him now.

The man who helped to bring me into this world, is no longer here. The person that I was before he left, will never be the same. But nine months later, a new me is taking form. I carry within me the best of who I was, and the hard & painful lessons of loss. Scars are still so fragile, a little nick, a tiny scratch, a gentle bumping into… and the wounds reopen. But I know it won’t always be so. I will create a new mosaic, a reflection of self that will be at once familiar and different.  Grief will not define me, but it will, it must, redefine parts of me. Like the formation of a new cell, like blood coursing through my veins, it is now a part of me. And so too is the resilience that strengthens me and restores the very fiber of my being.

Nine months. Today it signifies life and loss. It is a reminder of all that was and what can no longer be. It holds both pain and promise. He is gone, but I am here. I am still his daughter, he is still my father. I must learn to live with his final footnote. But our story will not end. It is in me. It is in my children. It is in my mother, my brother and every sacred memory I cleave to.  A life sustained, tucked deeply in my soul for safekeeping. And a life, my life, recreated, built from the wreckage and held together by love, by memories and the ties that will forever bind us.

Once I heard the sound of my children’s heartbeat, beating within me. Perhaps, if I listen closely now, I’ll be able to hear my father’s as well.

Birth is a beginning and death a destination;
But life is a journey, a sacred pilgrimage,
Made stage by stage… To life everlasting. (Rabbi Alvin I. Fine)

 

baby deborah and dad

 

yahrzeit

It’s been weeks since I’ve attended services. It’s not that I don’t want to. I want to say Kaddish for my father. I want to be with my family. I want to be a part of our new community. But here is my truth. Grieving a suicide loss is a very isolating experience. I don’t know people “like me.” Statistics tell me I should, and I’m certain they are there, but I don’t know them. My father did not just die. He died by suicide. He took his own life. His end feels violent. He was the victim and the perpetrator of his own homicide. To try and put the pain of that kind of loss into words is just not possible. I won’t even try.
My soul and my heart have been ripped open, everything that seemed to make sense no longer does, faith is hard. It hurts to pray. It hurts not to pray. I’m mad at God. I need God. I’m mad at my father. I miss him and ache for his presence on earth each and every day. “Why” has become my least favorite question. Yet I ask it daily.
I am new to this community, our new synagogue community of Congregation Har HaShem. I don’t know a lot of people, but they know me. I can not have the anonymity of another griever. And when I pray, or when I stand in shul and can’t pray, I weep. Sometimes it is a quiet weeping. Other times it is all I can do to hold myself together, I bite the insides of my cheeks, I can’t speak, every single fiber of my heart and my soul cries out in pain, but I make no sound. I feel exposed, stripped away of all defenses, laid bare in front of my God. It is a vulnerable feeling.
It is hard to have that feeling in front of strangers. It is hard to feel such overwhelming grief is on display, the new rabbi’s wife is falling apart. Do they know why? Do they wonder what is wrong? Do they think I’m simply losing it? Who are they? Some I know. Some I’ve built relationships with already… trust, honesty, realness… the good, the bad & the ugly. Friends. And some, many in fact, are new to me.
I don’t know how to be this version of myself in front of them. I’m not the version of me that came to visit during Fred’s interview. I’ll never be that same person again. But isn’t that the me they are expecting to meet? And what if I simply can’t meet them, not properly anyway? What will they think if the rabbi’s wife just comes to services, weeps openly, says kaddish and leaves before they even have a chance to say hello? And how do I answer the questions. How are you? How’s it going? Do you like Colorado? Are you settling in? On good days, better days, I have the answers. Other days I know I can’t really speak my truth. I can’t answer, “How are you?” honestly.
So I stay home. It feels easier. At least there, when I utter the words of Kaddish, when I cry because my dad ended his own life, in the home that I grew up in, in a way that feels so utterly and profoundly wrong on each & every level and in a manner that was intended to be lethal, nobody is watching me. This final act by my father was not a cry for help. This was his way out of the pain, darkness and despair that took root in his soul. No final goodbye, no reflecting on memories past, no holding hands. He was alone, he was all alone when he died. I don’t just mourn for his loss, I mourn for what became of his life, for the sadness and shame that he carried, the sense that he was not worthy, that somehow we all might be better off if he were gone.
I stand at services, prayers for healing hurt, prayers for peace hurt, prayers for comfort hurt, prayers for mourning hurt. Why? Because no matter how hard we tried, we could not give him peace, we could not give him enduring comfort, we could not shelter him. We loved him, with all that we had, but it wasn’t enough.
How do I pray for all of that? My prayers are mostly in my tears. And it is hard to contain them when I stop, try and take a breath and reach out to God. And it is hard to let them go in front of so many new faces. It is just hard to be that vulnerable.
But I want to go to synagogue. I want to let my new community know my pain, though it makes me feel so very exposed. Because, right now, four months after my father’s suicide, this is who I am. My therapist tells me the road to healing after a suicide loss, traumatic loss, is a hard one, a long one and one riddled with roadblocks, obstacles and triggers. And I have to walk it, every day. I move forward, I move back, I walk it without knowing others like me, so it feels at times like I walk it alone, though I know I don’t.
I hope that I can feel less vulnerable in time. As new faces become familiar, strangers become friends, and those that surround me in the sanctuary become my community, my kehillah. There, in that holy and sacred place, my wounds are laid bare. There, in that holy and sacred place, I hope Ill find the courage and faith to let them show.

Let me come in — I would be very still
Beside you in your grief;
I would not bid you cease your weeping, friend,
Tears can bring relief.

(To One in Sorrow by Grace Noll Crowell)

Dear Dad,

Everyone has left. The house is quiet. I am alone. It is Shabbat. And the permanance of your absence, your loss, is setting in. God I miss you. I miss your voice. So tonight, on this Sabbath eve-alone, I am going to watch some videos of you. Videos of happier days, family memories. I wanted to be alone with you. So I can weep out loud. I’m afraid to do it. I don’t know if I’m ready. But I need to see you in life… not simply think of you in death. I don’t know if I“m ready daddy–will the remembering make it hurt more? Will it ease some of the pain, even if only for a little? I haven’t even begun and the tears are flowing. I want so much for you to come back….but you can’t. So tonight, for the first time since your suicide, I’m going to visit with you. And I’m going to pray for some smiles & laughter, through my tears. Remembering is hard, not remembering feels harder…

Every flower is a soul blossoming in nature. ~Gerard de Nerval

Today is 3 weeks since my father’s suicide. The shock is wearing off, and beneath it lies a profound sense of loss, sadness and a grief so complex that words could truly never encapsulate it. That is the aftermath of suicide. But there is also the heartbreaking sense of permanence that is slowly seeping in. Never again to see him, hug him, hear his voice. The thought of that is like a brick in my heart. My dad’s last days were so full of anguish and pain. I want so much to know he is ok, at peace. I want to know, to sense that his spirit is with me. That he is near… And there it was today, one single magnolia flower on our tree had opened up & blossomed. Just one… Just today. Just when I needed it. My dad loved to watch the flowers bloom. Maybe, just maybe, that was his way of telling me, “I’m here.” At least that’s what I’d like to believe.

“Laughter through tears is my favorite emotion.” (Truvey Jones)”
― Robert Harling, Steel Magnolias

magnolia

The following is the content of an email that I sent to the office of Senator Rand Paul on February 4, 2015. It was in response to the following statement that he made in an interview with CNN:

Senator Paul “also asserts that he’s heard of cases where vaccines have caused ‘profound mental disorders. I’ve heard of many tragic cases of walking, talking, normal children who wound up with profound mental disorders after vaccines,'” Paul said.

Dear Senator Paul,
Lest you continue to say otherwise on this national platform which you’ve been given, my daughter is “normal.” Yes, she has autism. That, however, does not make her “abnormal.” And just to clarify, autism is not a “mental disorder”, rather it is a complex “neurodevelopmental” disorder. You see, facts and language matter here. They matter not only when they perpetuate falsehoods about autism and vaccines, but they matter in how my daughter sees herself.

How shall I answer her when she asks why a possible presidential candidate gets to go on national TV and distort the truth? When he demeans her value as a human being, reducing her to a “side effect” of a choice her parents made in order to protect her health and well being? Yes, you see, that is the implied message in this whole bizarre dialogue. We did this to her! Have you any idea how many distorted and perverted ways in which we, and even more significantly, I as the mother, have been blamed for our child’s autism? Enough!

Wouldn’t it be refreshing if conversations about autism could focus on the many ways we as a society need to work towards creating better educational, support, job, housing and independent living opportunities for people with autism? What if you used your air time to change the conversation? I know if I had your platform that is exactly what I would do.

Vaccines save lives. The MMR vaccination does not cause autism. How many children will have to get seriously ill or die from preventable illness while politicians like you wave the fear mongering flag in regard to autism? How many autistic ears heard your words? How many autistic eyes saw you on the news? How many autistic hearts broke at your distortions? How many autistic souls felt even more diminished at your mischaracterization?

To be clear, you and I are on opposite ends of the political spectrum. I’m not one of your constituents. Regardless of what you say or do, you were never going to get my vote. But I am a mother, consistently battling stereotypes about autism and working hard to empower my daughter to do the same. So it is on her behalf that I speak out. She deserves better in this national political discourse. I will not allow you to shame and blame without responding.

My beautiful girl was born with brown eyes, a full head of hair and chubby little thighs. She was born with a compassionate heart, a strong spirit, a quiet sense of courage and yes, autism. It’s part of her. It’s not always been easy, in fact it has been downright painful and hard along the way. But I’ve learned from her, I’ve marveled at her, I’ve been astounded by her…. She is not an abnormal other…. She is a differently-abled 16 year old young woman. And you know what? I would vaccinate her again in a heartbeat.

Sincerely,
Deborah Greene