Archives for category: Faith

This post was originally posted to my Facebook page on 5/29/15.

Dear Dad,
It’s Shabbat. Soon we will light the candles. I cooked today, sweet & sour lentils. I even made a banana bread. I haven’t found the joy in cooking again. But I am doing a little more of it. Feeling good at least to be feeding my family good food, healthy food, food that nurtures their bodies. Cooking & baking truly fed my soul before that phone call, before you took your life, before we buried you. I know that feeling will come back, but for now-no photos of my food, no recipes shared on social media, nope, I’m not there yet. I miss you dad. The words to Mourner’s Kaddish do not come easily. Simply uttering them makes the loss seem somehow so much more real & palpable. You were never really a religious man dad. I wonder if you had been, if it might’ve been easier for you to have “faith” that things would get better. It’s another one of those questions dad, the kind you’ll never answer, the kind I’ll never really get to ask. There are so many of those damn questions. Where are you dad? That’s another one–why can’t you come and visit me in a dream? Whisper to me in the wind and tell me you’re okay? I always wonder that dad-Are you okay? It’s Shabbat. We kindle the lights, we bless the wine & the challah. We welcome the Sabbath Bride into our midst. We wish for shalom, peace, on Shabbat. I haven’t found it yet Daddy. But I’m trying… I love you. And I miss you more than words can say.
Love,
Deborah

ShabbatCandles-733683

outside-flower-arrangements

A flower’s appeal is in its contradictions — so delicate in form yet strong in fragrance, so small in size yet big in beauty, so short in life yet long on effect. ~Terri Guillemets

My father loved spring. The world would come to life. Sitting outside, basking in the returning warmth of the sun, he would take in the blossoming of the trees, the budding of the flowers.

When the world looked cold & barren, on those winter days in New York, he discovered a way to add color to the backdrop of such bleakness.

In a wealth of clay pots, he planted silk flowers. Placing them along the walkway, sitting them out on the deck. He could lift the shades, as he did first thing every morning, and there they would be. No matter the season, they were full of color, if not full of life.

Silk flowers never die. The elements can not uproot them. When life’s passing storms hit, their color remains vibrant. They do not need the warmth of sun to nurture them, the buzzing of the bees to help the garden grow. Mother Nature can shower them with harsh rains, it will not hurt them. She can unleash wintry snows, their beauty stands bold against the winter white. She can coat them in a blanket of darkness, they will not wither. And when the earth is parched, longing for rain, they will not starve.

But they are not real. No, the most beautiful of flowers is a precious symbol of life. When darkness falls upon them, robbing them of light, they wither. When they sit in the center of the storm, they bend, they break. When their roots search in vain for sustenance, they are parched, weakened, so very fragile.

We are like precious flowers. And we are subject to the seasons & storms of life. When we feel immersed in the darkness, unable to bend toward the light, we wither. When it feels as if our roots are unsteady, no longer grounded, we lose our strength. When each day seems to bring a new storm, our colors become dim, less vibrant. And when it feels as if the storms will never pass, bit by bit, it is as if a piece of us feels it is dying. Even if it is not.

How I wish my father was a silk flower. But he was not. His life was a precious one. He had weathered many storms, and he had basked in the sunlight. He put down roots, and planted a garden & he tended it. At times it was full of life, and other seasons saw it struggle. But it was his garden. He was not a perfect flower, flawed as we all are. The petals told a story, his story, our story.

Life gave him too many dark days these last months. He couldn’t find the sunlight. He couldn’t feel the strength of his roots. He could not trust that though he might bend in the storm, he need not break. He couldn’t trust that the garden he had nurtured, would not let him wither, that he was not casting a shadow over our own bright rays of sun.

But we who loved him know, he could have once again blossomed. Like a flower in the spring, he could once again stand tall. His roots that much stronger because of all he had endured. The sun would shine again, and soon the storms of winter would have been in the past. He could have once again felt joy, as he looked at the garden that surrounded him. There would be a return of the vibrant hues that had filled his life before. Beauty would replace pain…

My father loved silk flowers. But silk flowers are not real. And they can only endure life’s storms, because they can not feel them.

When the night has been too lonely
And the road has been too long
And you think that love is only
For the lucky and the strong
Just remember in the winter
Far beneath the bitter snows
Lies the seed that with the sun’s love
In the spring becomes the rose (The Rose by Bette Midler)

roses-in-winter

Mitzvah PicturesFebruary is Jewish Disabilities Awareness Month. A few years back, when I was writing, “Puzzled: Raising a Child With Autism & Other Pieces of Family Life” I shared these reflections. In addition to being on my blog, I was invited to share them once again with Jewish Family & Career Services. I just rediscovered it on their blog, and believe it to still be a timely & meaningful message. I hope that you will think so too. Because the values of inclusion, awareness & acceptance should be lived out every day in our synagogues.

Rabbi Eliezer says: Let other people’s dignity be as precious to you as your own. (Pirkei Avot 2:15)

rabbi

Faith has always been an integral part of our family life. From the time our children were very young, we shared with them the traditions and beliefs that were a part of their Jewish heritage. As we read books about letters & numbers, shapes & colors, we also read stories about God. And just as we sang the familiar songs of childhood, so too did we end each day with the Shema. Even their names connect them to their Judaism. They were not given an English and a Hebrew name, but only a Hebrew name. Faith has never been a separate piece of our lives, reserved for synagogue or holidays. It is woven throughout the tapestry of our days, a piece that is inherently and intimately bound to all other pieces.

When Yael was diagnosed with autism, faith carried us through those early days of fear and angst. It continued to accompany us into a place of acceptance, strength and hope. Yael has always loved being Jewish. She embraces her faith with incredible ease. I am often mystified by that. Autism means that she sees the world through such a literal lens, yet faith and God are anything but that. She loves to study Torah with her father, and when she sings at synagogue she does so with such feeling and an obvious sense of connection to the prayers and their meaning.

When Yael was a very little girl, she stood in front of the mirror one day. It was an ordinary occurrence, the mirror seemed to be one of her favorite places to play. Her reflection made for a wonderful & entertaining playmate. At the time, though she had a fair amount of words, she tended to use more babble when she spoke. But, on this day, as she stood playing with her reflection she spoke her first complete sentence. Three words that have stayed with me until this day, “I see God.” My husband says that there is a Jewish teaching, that very young children are able to see angels – messengers of God. I believe that on that day, that is what Yael saw as she looked in the mirror. B’tzelem Elohim, she is created in the image of God and the divine spark lives within her.

Every day for Yael and for our family, we live with “Jewish Disability Awareness.” Neither faith, nor autism, touch our lives for only one month of the year. It is a daily theme as we navigate life on the autism spectrum, as it is for so many families. It is with great pride that Yael will talk of her Judaism and her autism, and both have surely played a role in shaping the incredible young lady that she is today. They are intrinsically bound with Yael’s sense of self and each inhabits a piece of her soul.

Judaism and the awareness of those who live with disabilities and challenges, should not exist as separate entities. It is not enough to bring them together for one month out of the year. I have heard from so many parents over the years about how isolated they feel. Those who most want to embrace their faith, who are often in the most need of spiritual comfort, often find those gateways inaccessible. And even when they are able to find a way inside, they often stand on the periphery, never truly feeling that they are a part of their Jewish community. They stand ready to make a quick exit the moment their child’s disability becomes “disruptive” to others and often, over time, they simply stop trying to return. In Pirkei Avot 2:5, we are taught “Do not separate yourself from the community.” But to feel that you don’t fit within your faith, that there is no room for you or your child, creates a profound sense of loneliness and loss. And, I believe that our Jewish community becomes weaker every time another family is asked to simply accept that loss.

I recognize and respect the value in teaching about acceptance and diversity during Jewish Disability Awareness Month. I am grateful that the seeds of awareness and understanding are being planted in Jewish communities around the country. But it is not enough. To truly nurture the souls of those living with disabilities, we must begin to embody the Jewish values of inclusion each and every day. We must model it for our children and make it an inherent part of Jewish education. We must challenge ourselves to create a safe place for people with disabilities and their families, to worship and participate in our Jewish communal life. We must treat those living with disabilities not simply as guests who are welcomed once in a while, but as important members of our community, with something of value to contribute.

Yael’s understanding of her faith continues to grow, as does her understanding of her autism. Both will continue to play a role in her life each and every day. Autism will surely bring with it new challenges and obstacles, and her Jewish faith will just as surely help her find the strength and courage to persevere. Life on the spectrum will not be easy to navigate. Life with a disability never is. But faith can be a compass on that journey. And we owe it to all of those living with disabilities and challenges, to give them access to that compass. So that when they want to find their way to their spiritual home, their Jewish community will be waiting to embrace them with open arms. For, as it says in Isaiah 56:5: “My house shall be a house of prayer for all people.”

Mitzvah Pictures

Ben Azzai taught: Do not disdain any person; do not underrate the importance of anything – for there is no person who does not have his hour and there is no thing without its place in the sun. (Pirkei Avot 4:3)